More Fabulous Progress

Well I just got off the phone with our nurse at the stollery, and she had some more wonderful news this week. A's AFP was 88 this week. It is just plummetting. Before this all started his lowest AFP was 70. Normally it should be around 9. She expects about 3 more blood draws and we should be there, so that is about 6 weeks. Then we will have to wait about a month to get a surgery date to take out his IVAD.

I am very hopeful that by the end of summer my little man will be back to normal and back on track. He took one step by himself the other day, and then promptly fell down. But it's the first time he's even tried to walk by himself. I bought him runners and make him wear them all day, this seems to help his interest in walking. Sure hurts though when he steps on my foot.

He is not speaking yet but continues to make lots of noises, he also has a great comprehension of what we are saying to him. Whether or not he choses to listen is another thing. He makes tons of noises and loves when we read him his bed time story.

It always amazes me how much he loves to laugh and smile. If you laugh he laughs, and his laugh always comes from his toes. It sure is cute. He also loves to dance, whenever there is music on the TV he is rocking out.

He won't sleep the night in his own crib, he insists on sleeping with his mom. So we are going to be working on that soon too. I knew it was a bad idea to let him sleep with me but what do you do when your baby is having bad dreams and hurting?

Tomorrow is his ultrasound, so after that I will be working on getting him to eat more adult food instead of baby purees. He is weaned off formula now so we need to expand his diet.

The problem with all of this is my child is just like his mom, stubborn. He likes what he likes and he doesn't think you should change it. So his mom has to be just a bit more stubborn, but she has lots of years of practice.

Well I will post again in two weeks or when I get his ultrasound results.

Thanks again for all your love and support

Carrieann, Clint and A