Good News Update

Hi all

For those of you wondering I will keep this blog active until we get A's IVAD out, but the post will only be once every 2 weeks.

We got more great news today, last week A's AFP was 546 so it's really dropping, and after conferring with his oncologist, we have decided he only needs blood draws every second week, which takes lots of stress off of me, and him.

Last week was a very traumatic blood draw for A and he was upset for a couple of hours later, we had to do some thinking and research and hope to minimize this trauma now. It is so hard because he gets poked so often I can't have him freaking out every time, for the next 8 years. So hopefully our strategies will work.

A is doing really well, this week he has discovered his hands and Clint is pretty sure he's saying hand. Today he took a couple of steps by himself for his Auntie Chrystal but mom didn't get to see. He's trying to climb up on the couch and can climb down by himself. He is still a chronic button pusher and quite often weighs getting spanked with the satisfaction of pushing buttons.
He loves to look at himself in the mirror and recognizes mom and dad in pictures.

Yesterday he took mom and dad out to dinner for their anniversary. One good thing about all his travels he is very well behaved in restaurants.

His is my ray of light and hope. Again it overwhelms me at times how lucky we to have this beautiful soul in our lives.


Carrieann