Some news

Hi all

Sorry I haven't blogged in awhile we have been really busy and going through a lot of changes in our household, I am hoping things will slow down for a couple of weeks. So since last time that I blogged we have had two AFP results back one was 16, and then last thursday's was 9 finally. 9 is the magic number we have been waiting for, A is now normal, but his oncologist wants to make sure so we have no plans to remove his IVAD yet. He wants A to have another AFP drawn, next Thursday, and then we'll see.

For me I really want A's IVAD out. It bothers me and I know it bothers him because he knows it's there. He has not been sleeping well at all, and every time he gets upset, scared, or meets someone new I see him touch his IVAD so I know it bothers him. He is having night terrors every night and ends up sleeping with his mom. I am going to be trying some new things with him in the hope this ends soon, but nothing I have tried so far has worked. Last night Clint tried to take him and calm him down and it took over an hour before he had to give him to me to try. Finally we got him calmed down and asleep. This of course is very trying and wearing on both me and Clint so hopefully we can find some answers. I do think that once his IVAD is out he will sleep better.

When A had his 18 month immunizations they refered us to a speech therapist and early intervention program for him. He has said his first word and of course it wasn't mama or papa, as we were going down the toy aisle in superstore he pointed and said "car". He loves his monster trucks, and his hotwheels. When we were in the Stollery they refered us to a program called FSCD we never heard from them till a couple of weeks ago, and then the lady had to go out of town but we are hoping one day to meet with her, and hopefully the program will offer some help with some of the costs of A's life. We have had to admit A needs special needs as nothing fits him properly and everything you buy him has to have special considerations. He is now 43.5 lbs and 3 ft.

An a lighter note, A can still light up a room with his smile. He is a going concern, running, climbing and figuring out things. He got to go mud boggin with his daddy this weekend and loved it. He loves to play in the dirt and watch the trucks.


Thanks again for all the care and support

Carrieann and Clint